Stroud-based charity Meningitis Now has highlighted the signs and symptoms for parents
Parents of a baby struck by meningitis are coming to terms with being told their little girl will lose all of her limbs, her sight and hearing, and suffer 90 per cent brain damage in the worst case doctors have seen in 25 years.
Ten-month-old Kia Gott has already had her right arm removed and is due to have one of her legs amputated on Monday.
Dad Paul, 35, went to check on her in the middle of the night, sensing something was wrong. She was then rushed to hospital. This all happened four weeks ago.
When he switched the light on he saw her face, neck and chest was covered in a terrible rash; this is one of the known symptoms of meningococcal septicaemia.
Paramedics arrived fast to try and attend to the little girl but Kia's veins had collapsed. Drastic action was needed and they had to drill into her tiny shin to give her emergency drugs.
While that was happening the baby girl had a mini cardiac arrest and was rushed to Bradford Royal Infirmary, West Yorkshire.
Parents of three Paul and Vikki, 30 were then told the devastating news that all four limbs would have to be removed.
Then later an MRI scan also showed signs she would be deaf, blind and have 90 per cent brain damage.
Even though the doctors' have given a shocking prognosis; Kia's parents are clinging on to hope she can still hear and see them and her older brother Kayden, eight, and sister Elsie, who is four.
She is now off a ventilator and although still sedated she is breathing for herself.
Paul's aunt Donna Gott said: "Paul and Vikki are traumatised. They know she is in a bad way but they can't grasp she can't hear or see them.
“They believe she is responding to them and their voices and when Elsie sings her nursery rhymes.
"She is yawning, moving her head and her arm - the hospital has said it's the worst case of Meningitis C septicaemia they have seen there in 25 years.
"Because she is on so many drugs at the moment it's hard to do the tests they need to find out for sure but they will keep monitoring her.
"An eye specialist has given some hope her eyes might still be healthy.
"Vikki has not left the hospital - she is feeling an immense sense of guilt and is scared if she leaves the hospital something bad will happen.
"It's heart-breaking - Paul is a self-employed window-fitter and is still having to work two days a week because bills still need paying.
"Kayden and Elsie are staying over at the hospital house with their mum at weekends. They are struggling too."
Two days before Kia fell ill she had been at her older siblings' school in Wyke, for a family photo.
Later that week Kia's mum took her to the GP, worried that she "was not herself."
Hospital consultants have since told the family that the GP would not have been able to detect meningitis at that time.
When Kia's dad Paul, 35, came home from work that night, Kia did not get excited to see him - which was unusual. The worried parents stayed up with her until midnight then went to bed.
Mrs Gott said: "They have a long hard road ahead of them. But there is hope.
"She will lose all four limbs but she is responding when we talk by moving her head and her arms.
"She is even crying and yawning. We will have to see how she develops over the next two years.
"Her hearing and sight is affected but that doesn't mean she will never hear or see again.
"Paul and Vikki have accepted that it's life-changing but as long as she can hear and see they will get by."
The NHS stopped giving the MenC vaccine to 12-week-old babies in July last year because the success of the vaccination programme meant there were almost no cases of the disease in babies or young children in the UK.
Meningitis C septicaemia is caused by bacteria that lives in the back of throats of one in ten people, normally doing no harm.
However, if if it somehow gets into the blood system it can trigger a potentially life-threatening infection.
Donna says Kia will now face a long few months of rehabilitation and the family home will need adaptions to make it suitable for the baby when she is finally discharged from hospital.
To help pay for them the family has set up a fundraising page which had raised more than £10,000 at the time of writing.
For all the signs and symptoms, visit Stroud-based charity Meningitis Now's website here.